About Idiopathic Pulmonary Fibrosis
What is IPF?
Idiopathic pulmonary fibrosis (IPF) is a progressive and generally fatal disease characterized by scarring of the lungs that thickens the lining of the lungs, causing an irreversible loss of the tissue’s ability to transport oxygen. IPF ultimately robs a patient of the ability to breathe.
~ NIH National Heart, Lung, and Blood Institute
More than 50,000 IPF deaths a year in the US alone. More people die from IPF each year than from breast cancer.
The incidence of Idiopathic Pulmonary Fibrosis (IPF) has DOUBLED over the past decade.
Mortality Rate without a lung transplant
Percentage IPF is initially misdiagnosed
Die within 2 Years of Diagnosis
Die within 5 Years of Diagnosis
There are no commercially available diagnostic tests
There’s also relatively little research into this under recognized disease at a time when recent technological advances make incredible discoveries possible.
There is huge potential to move toward better understanding of the disease and ultimately cures, but more funding is needed.
“If micro-organisms are triggering and/or sustaining the disease and we are able to figure this out, then a cure should be in sight.”– Dr. Jerry Eu, Former Program Director, Immunology/Fibrosis at the NIH (2016)
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Our foundation is laser focused, solely committed to supporting pulmonary fibrosis research.