About Idiopathic Pulmonary Fibrosis

What is IPF?

Idiopathic pulmonary fibrosis (IPF) is a progressive and generally fatal disease characterized by scarring of the lungs that thickens the lining of the lungs, causing an irreversible loss of the tissue’s ability to transport oxygen. IPF ultimately robs a patient of the ability to breathe.

~ NIH National Heart, Lung, and Blood Institute

More than 50,000 people die from IPF in the U.S. each year, more deaths than from breast cancer (see source study).

The incidence of IPF doubled over the decade,

according to the New England Journal of Medicine. Learn more.

%

Mortality Rate without a lung transplant

%

Percentage IPF is initially misdiagnosed

%

Die within 2 Years of Diagnosis

%

Die within 5 Years of Diagnosis

There are no commercially available diagnostic tests

There’s also relatively little research into this under recognized disease at a time when recent technological advances make incredible discoveries possible.

There is huge potential to move toward better understanding of the disease and ultimately cures, but more funding is needed.

“If micro-organisms are triggering and/or sustaining the disease and we are able to figure this out, then a cure should be in sight.”

– Dr. Jerry Eu, Former Program Director, Immunology/Fibrosis at the NIH (2016)

The CDC identified a statistically significant cluster of IPF patients diagnosed at a Virginia medical center. Learn more.

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Our foundation is laser focused, solely committed to supporting pulmonary fibrosis research.