Anne Ballentine on the Prevalence of IPF

Anne Ballentine on the Prevalence of IPF

IPF Foundation board member Anne Ballentine never really realized how prevalent Pulmonary Fibrosis was until she looked at her own network of family, friends and neighbors. The incidence of IPF has doubled over the past decade, and we don’t know exactly why it’s...

Feeling the Need for Control Since My IPF Diagnosis

Feeling the Need for Control Since My IPF Diagnosis

It is an understatement to say that being diagnosed with a chronic illness causes everything to feel out of control for a patient and their family. The loss of control tends to happen in two phases: 1) the acute phase, which is everything that feels out of control...

Keeping Yourself Safe & Healthy While in Public: 4 Important Steps

Keeping Yourself Safe & Healthy While in Public: 4 Important Steps

Patients living with any type of compromised immune system or respiratory disease understand implicitly the importance of staying away from germs. The caveat is that despite our chronic illness, patients still have to run errands, travel, and be in public so the...

Listen: Help Us Spread the Word About IPF

Listen: Help Us Spread the Word About IPF

In honor of Pulmonary Fibrosis Awareness Month, I’d like to tell you, in my own voice, what it’s been like living with a terminal lung disease as a young woman. Naturally, I felt very alone, unsettled, and isolated from my peers when I was diagnosed. Sharing about my...

Listen: Why PF Awareness Month Is Important To Me

Listen: Why PF Awareness Month Is Important To Me

In honor of Pulmonary Fibrosis Awareness Month, I’d like to tell you, in my own voice, what it’s been like living with a terminal lung disease as a young woman. Naturally, I felt very alone, unsettled, and isolated from my peers when I was diagnosed. Sharing about my...

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