Feeling the Need for Control Since My IPF Diagnosis

Feeling the Need for Control Since My IPF Diagnosis

It is an understatement to say that being diagnosed with a chronic illness causes everything to feel out of control for a patient and their family. The loss of control tends to happen in two phases: 1) the acute phase, which is everything that feels out of control...

Listen: Help Us Spread the Word About IPF

Listen: Help Us Spread the Word About IPF

In honor of Pulmonary Fibrosis Awareness Month, I’d like to tell you, in my own voice, what it’s been like living with a terminal lung disease as a young woman. Naturally, I felt very alone, unsettled, and isolated from my peers when I was diagnosed. Sharing about my...

Listen: Why PF Awareness Month Is Important To Me

Listen: Why PF Awareness Month Is Important To Me

In honor of Pulmonary Fibrosis Awareness Month, I’d like to tell you, in my own voice, what it’s been like living with a terminal lung disease as a young woman. Naturally, I felt very alone, unsettled, and isolated from my peers when I was diagnosed. Sharing about my...

Listen: Why I Chose To Write About My Experience

Listen: Why I Chose To Write About My Experience

In honor of Pulmonary Fibrosis Awareness Month, I’d like to tell you, in my own voice, what it’s been like living with a terminal lung disease as a young woman. Naturally, I felt very alone, unsettled, and isolated from my peers when I was diagnosed. Sharing about my...