IPF Foundation board member Anne Ballentine never really realized how prevalent Pulmonary Fibrosis was until she looked at her own network of family, friends and neighbors.
The incidence of IPF has doubled over the past decade, and we don’t know exactly why it’s happening. Let’s work together to crack this mystery by funding research for treatments, and ultimately for a cure.
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I cannot donate at this time but will in the future. I was diagnosed in 2015 with IPF. I go to the Temple Lung Center in Oaks, PA. Doing fairly well but praying they can find a cure to help me & all those that are affected.
Thank you for all you are doing to raise awareness about IPF. My father-in-law died from IPF 26 years ago and my husband was diagnosed 3 years ago. Fortunately my husband received a lung transplant 10 wks ago. While we are very grateful for this gift of a new lung, it is not a cure. We started a research fund for IPF at Ohio State University Hospital 3years ago. It has grown substantially and the scientist are doing great work!
I have had IPF for a little over two years.
Continues to get worse.
My husband was diagnosed with IPF a little over 4 years ago, He is currently on oxygen 24/7, has good and bad days. He is trying to stay positive.
I was diagnosed with IPF 2 years ago. The progression has been very slow. Not sure if this is typical or if suddenly it will take off. Some shortness of breath is my only symptom. I will donate very soon. Thanks and is so good to be able to connect with others like myself.
I was diagnosed November,2017 with IPF! I STRUGGLE! I RESEARCH CONTINUOUSLY FOR HELP!!!! I CAN’T BELIEVE THERE IS HARDLY NO RESEARCH BEING DONE!!
I was just diagnosed a month ago. Don’t know what to expect. Dr. Tells me not to worry they have several meds to keep it from progressing. I am a little confused.
My wife pass away with this last June we were married for 63 years and I kept her home and looked after for 5 years she suffered so graciously right up to the last day. Even today I miss her so much.