• The incidence of idiopathic pulmonary fibrosis (IPF) doubled over the decade, according to the New England Journal of Medicine. Learn more.
  • The CDC identified a statistically significant cluster of IPF patients diagnosed at a Virginia medical center. Learn more.
  • An estimated 50,000 people die from IPF in the U.S. each year, more deaths than from breast cancer. (See source study.) This statistic does not include the high percentage of people who are never diagnosed. See graphic below. Experts agree that we don’t know the extent of deaths and that more research is needed.

Estimated percentage of idiopathic pulmonary fibrosis patients in each severity who remain undiagnosed across the US, Japan, and five major EU markets.

52% of Mild Cases Diagnosed
33% of Moderate Cases Undiagnosed
17% of severe cases diagnosed

Source: Datamonitor Healthcare’s proprietary idiopathic pulmonary fibrosis survey, July 2015

“If micro-organisms are triggering and/or sustaining the disease and we are able to figure this out, then a cure should be in sight.” 

– Dr. Jerry Eu, Former Director,
Immunology/Fibrosis at the NIH (2016)

What we do

The IPF Foundation is an independent, nonprofit organization founded with the mission to accelerate cures for IPF. We are the only organization that gives 100% of your donation to IPF research.

We supported the CleanUP IPF trial, the first pragmatic trial in IPF and the largest, single, NHLBI sponsored IPF trial. Once completed, researchers will utilize new technologies and platforms to analyze the collected data and biological samples. Learn more.

100% of your online donation goes to IPF research